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Boniva Side Effects


Boniva (Ibandronate) is a drug prescribed to treat or prevent osteoporosis in post-menopausal women. Share your Boniva side effects and experiences by posting a comment here.

The officially reported side effects of this drug are:

Common: bladder pain, chest pain, bloody or cloudy urine, cough producing mucus, difficulty breathing, fever or chills, painful, difficult, or burning urination, frequent urge to urinate, lower back or side pain, pounding in the ears, nervousness, shortness of breath, sneezing, slow or fast heartbeat, sore throat, wheezing, and tightness in chest.

Less common: bloody or cloudy urine, congestion, aches and pains, difficulty swallowing, dizziness, dryness of throat, frequent urge to urinate, fast heartbeat, hives, itching, hoarseness, numbness, puffiness or swelling of the eyelids or around the eyes, face, lips, or tongue, runny nose, skin rash, swollen glands in neck, tingling, trouble swallowing, tiredness or weakness, and voice changes.

Unknown incidence: blurred vision or other vision changes, severe and occasionally incapacitating bone, joint and/or muscle pain, eye redness and/or tenderness, heavy jaw feeling, loosening of a tooth, pain, swelling, or numbness in the mouth or jaw, sensitivity to light, severe eye pain, tearing.

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Comments (162) | Leave a comment

After taking the once monthly dose of Boniva, I am on a crusade to tell women not to take this poison! An active runner, educator and healthcare worker, I experienced excruiating back spasms, back pain to the point of being unable to stand without help, extreme flu-like symptoms and joint pain. For nearly 3 weeks I felt like a 90 year old unable to do simple activities. Walking was a project. My otherwize cheerful disposition turned to depression quickly. With no other medical problems and on no other medications, the Boniva was the only change. My doctor subsequently told me not to take a 2nd dose. I'm back to my normal lifestyle, but caution anyone to take this medication. Eat well, exercise and enjoy life. Your bones will be o.k.

Take good care.

Posted by Anonymous on September 27, 2007 3:46 PM | Permalink | Reply

Nursing home doctor prescribed Boniva to 89 year old lady with advanced incurable Alzheimer's Disease. Is there someone out their that could give me a good reason for this
medical treatment?

Posted by Don Glen on June 30, 2013 8:14 PM | Permalink | Reply

I was given a sample of Boniva at my doctor's office. It was offered very casually, as if it was a bit of a step up from taking calcium and vitamin D supplements. The results of my bone density were not in yet, and when they were completed did not show osteoporosis.
It was unlike me to take something without research, but I did. Subsequently, I felt like I had the flu, aching joints, feverish, exhausted, and after a few days it occurred to me to research this medication - initially I thought I had some kind of bug. For about three weeks I felt extremely ill and realized that this might be associated with this medication. With further research, I discovered that the half life of this drug in the body is terrifyingly long and the benefits are questionable. I cannot think of any reason to ingest this substance - there are too many other effective actions to take without so many negative consequences, and the benefits if any are outweighed by prolonged healing times in the event of a fracture, as well as the immediate unpleasant side effects. Look for other choices.

Posted by jeannie lindsay on September 27, 2007 4:47 PM | Permalink | Reply

I took Boniva for 3 months. The first month I did not notice much mainly because I had just had arthroscopic knee surgery and was in pain from that... the second month I took it as prescribed. I did stood up did not sit or lay down for more than an hour. I went to sleep. In the middle of the night I woke up with such excruiating leg pains, like charley horses only way more painful. I was unable to move for quite a while. It was very scary and obviously I didn't sleep well for the rest of the night. For the rest of that month I was kind of achy..not feeling right. The third month, I took it as prescribed and I had the same reaction. Leg cramps and pain so bad that I thought I was going to be paralyzed. I stopped taking this awful drug and have not had any more pain like that. I don't care what Sally Field says Boniva is a horrible drug with way too many side effects....... women beware!!!!!!!!!! I heard that it is the same chemical used to take off carbunkles or whatever they are called on ships. (the build up of gunk) No thank you...

Posted by Lisa on September 27, 2007 7:16 PM | Permalink | Reply

I took Boniva once and will not take it again. I had flu like symptoms for 4 days and felt horrible. Chill, aches and pains. I am not taking any drug for my Osteopenia now that I have done research and found that bearing weight while exercising is the key to building strong bones. I wear a 10 pound weighted vest while doing my 30 minute walk each day. Just eat healthy and exercise and stay away from Boniva!! : )

Posted by Teresa Edwards on September 28, 2007 5:49 AM | Permalink | Reply

Since I have GERD and reflux, I was given an injection of Boniva . 24 hours later my hand, where a vein was used, had swollen and was throbbing. In the ER I was diagnosed with cellulitis and started on a strong antibiotic. 3 days later I was discharged from the hospital with what the doctor said was phlebitis. I heard a nurse say that so small a vein should never have been used. I don't know how much of my reaction was due to using that vein and how much to the drug, but I will never use Boniva again. I am currently on Forteo, and my bone density tests show improvement of the spine but not of the hip. Forteo is a daily injection, easy to give, but limited to a 2-year period (although I know one doctor who has prescribed a 3rd). Boniva, Fosimax, Actinel, Reclast are all in the same family of drugs, with similar side effects-- the bisphosphonates. Forteo is a synthezied hormone. Strontium ranelate is available in Europe and has not only rebuilt bone but increased cartilage; FDA has not approved it for use in the US.

Posted by grandmaw on September 28, 2007 7:52 AM | Permalink | Reply

I took that rottne poison pill 1 year ago. I am still getting symptoms to this day. I become tired quite often and feel lousy. I get severe jaw pain at least once a month. I have almost lost a tooth and others have chipped. I would not recommend even my worst enemy to take this pill. My doctor told me it was the flu but I broke out in a severe rash all over my body and the rash appears every time I shower. Please who ever reads this take all our words for this the stuff is a poison.

Posted by Anonymous on September 28, 2007 8:35 AM | Permalink | Reply

Within 24 hours had severe flu like symptoms with nausea, vomiting, diarrhea and stomach bloating. Experienced severe, deep joint pain, mostly in the hip and spine region. Also experienced muscle pain all over my body. Severe acid reflux continued unabated for the entire course of the medication.

The second month I continued to experience flu like symptoms and severe, deep joint pain in the right hip and spine and muscle spasms/pain. Most days I could barely walk. I couldn’t stoop down because I was unable to get back up. Finger joints were swollen and stiff as if I had arthritis. I walked as if I was 90 years old and I'm only 55. Pain was almost unbearable in the hip and I couldn’t find a comfortable position sleeping, standing, or sitting.

The third month the intestinal distress was most acute. I had deep intestinal pain with a lot of gas, diarrhea and nausea. Still had the severe, deep joint pain as in the prior months with muscle spasms/pain. Started having a pain just below the breastbone in the chest area that lasted most of the month.

The fourth month was more of the same acute intestinal distress and deep joint pain with muscle spasms/pain. The breastbone pain intensified and I experienced spasms in the area just below the breastbone that were excruciating.

Took the final dose in December, 2006, just to see if I had a repeat of the prior symptoms. Nothing improved and I decided to not take any additional doses. December was a miserable month when I was practically unable to get out of the bed and spent most of the month there, only getting up occasionally.

This drug seemed in intensify any weak joint in my body. Any area that had a previous break (arm and spine) was affected as was the hip. The intestinal distress took almost 3 months to finally clear up.

This drug is poison to my system and I won't take it ever again. I'll try to combat osteo the old way with calcium and exercise. At least I will have a decent quality of life in the interim.

Posted by Mary Bourgeois on September 28, 2007 11:56 AM | Permalink | Reply

I was prescribed Boniva for Osteopenia, and been on it six weeks when I began to have pain in my hips, back, knees, legs, and arms. My muscles, joints, and bones hurt. Getting up and down from a sitting position was aweful. I dreaded going to the bathroom. I was on it a total of three months, and it took several more months for me to get back to my old self, once I stopped taking the Boniva. This is a frightening drug, and needs to be pulled from the shelf for further research. I was not ready to be released. (Oh... and a few times It had flu-like symptoms, fever, aches, and chills)

I'll never take Boniva again.

Posted by Penelope Jensen on September 29, 2007 10:03 PM | Permalink | Reply

After using fosomax for 4 years, I started having trouble swallowing so my dr. put me on boniva....After 2 doses only, I started having severe pain in my back (upper right quadrant and around and under right breast bone). It was so incapacitating, it ruined my whole summer and took 3 months to leave. Of course, not one doctor wanted to believe is was from the drug until one did check it out online amazingly so and confirmed my reality. I reported it to the drug company that manufactures this drug and also to the FDA but noone seemed to care....I even wrote a letter to Sally Field informing her that not all of us are quite so lucky to experience no horrible side effects from this drug. For those of you who are interested, biosulfinates (sic) are a cleaning solvent and are a major ingredient in all of these drugs for osteoporosis....It also takes forever due to the life of the drug, to leave the body....It may work for some but certainly not for all. I do believe those of us who are experiencing these side effects (also ulcers, severe indigestion, necrosis of the jaw, etc. are more wide-spread then the drug company wants to admit.

Posted by carol on October 1, 2007 8:30 AM | Permalink | Reply

After taking my first dose the very next day I ran a fever and was so sick I could hardly get out of bed. Called my doctor and she said probably a virus, not the Boniva. I have taken 5 doses and since then have had bronchitus twice, aches & pains, insomnia & a severe attack of IBS. My stomach was cramping so bad that every time I took a bite of food I would cramp up. I am now on Nexium for reflux and when I lay down at night I hear gurgling in my throat. I have been off it for 10 months now and continue to have reflux problems, coughing after eating. I am walking on a treadmill and lifting light weights and will have my bone density checked again soon, but will not go back on Boniva.

Posted by MGR on October 1, 2007 5:12 PM | Permalink | Reply

i took boniva for 7 mo. & was almost crippled ,the pain in my lower back ,both hips was so bad i could not walk but a few feet at a time ,also had severe diarrhea ,after several visits to my chiropractor asked what meds. i was taking ,the only thing i was taking was boniva ,he told me to stop ,this stuff is poison .i did ,have been off 1 yr.& 5 mo. still on pain meds. ,but not as much ,i am 60 yrs.old & have never had such pain .this poison needs to be taken off market .Roche the drug co. has my medical records .please call the fda medwatch 800 332 1088 & roche 800 526 6367 & report yourself if you havent already .& thanks Rachel for contacting us ,the more people hear about this the better .

Posted by Regina on October 3, 2007 6:05 AM | Permalink | Reply

I took ONE Boniva pill in the winter of 2007, due to osteopenia. Within 12 hours, I felt like I had the flu. within 24 hours, I had the most severe low back pain and sternum (chest) pain. One week later, I developed sever leg cramps. These were symptoms I had NEVER before experienced. I didn't even make the connection to Boniva until a few weeks went past and I was ready to take my second pill. Then all of a sudden, it clicked and I started doing research. To my surprise, I found that these are much more common side effects than originally thought. I felt like I aged decades over a two week period - hey, isn't this medication supposed to help you and not kill you??? After doing more research, I decided to hold off on ANY biophosphonates and keep doing what I am doing (exercise, eat right, calcium, Vitamin D etc.) I feel that younger and younger people are being prescribed these medications that were never intended for people to be on for decades! I am so happy that I discontinued this medication after one pill.

Posted by Anonymous on October 4, 2007 6:17 AM | Permalink | Reply

WOW! So many negative experiences with Boniva. Thought it important to post a positive one. I have been taking the drug for a year now with absolutely no side effects. I much prefer taking this pill once a month rather than the alternatives that require once a week dosing because I have a a long history of heartburn caused by a hiatial hernia. Prilosec keeps the heartburn at bay and the Boniva doesn't aggravate it in any way. The only negative I can say is that my insurance company will not pay for it.

Posted by Kathy on October 4, 2007 11:41 AM | Permalink | Reply

Diagnosed with Osteopenia,I took 1 dose of Boniva, and started having severe lower back pain, and unusual twinges of pain in my legs. I NEVER had back pain before and was puzzled by it. I thought I pulled my back in dancing classes. I did not associate the back pain with Boniva until I reread an advertisement for Boniva in Women's Day and noticed back pain was a side effect. I am not on any other medication, and will rethink taking Boniva.

Posted by CAM on October 7, 2007 8:37 PM | Permalink | Reply

I began taking Fosamax 4 to 5 years ago because I was diagnosed with osteopenia. I have always had some back pain and arthritis so did not notice anything too unusual at the time. I then had back surgery because of a disc problem 2 years ago and about the same time, my doctor switched me to Boniva. The pains in my back and hips were sometime unbearable, but I blamed the pain on the after effects of the surgery. After a year of this, I went back to my neurosurgeon and told him of my complaints--another MRI later--and he found that altho I had some deterioration in the back, there was no reason for this discomfort. Well, I guess I am a slow learner--I took my last Boniva on 10/1/06 and could barely move the next day. I've not taken another one since. I lost parts of some back teeth--again was told this was "part" of aging. I'm very active--love to walk--play golf 3-4 times per week, play with grandkids, etc............I also had trouble with redness and swelling of the eye area, itching. I truly believe all this was the effect of the Boniva. I still have some problems, even after more than a year off this drug--but all in all, I believe I am a little better. I would not recommend this drug (nor Fosamax) to anyone.

Posted by Lucie O'Brien on October 8, 2007 5:52 AM | Permalink | Reply

I began taking Boniva July 2007. The first pill left me feeling that I had pulled a muscle in my chest cavity. It took approximately 5 days to subside. It felt like I had broken a bone or something every time I turned my head, my whole spine hurt. My legs feel like I have restless leg syndrome. My tongue gets sore, my teeth are loose, I feel nauseous most of the time and nothing I eat will satisfy my taste buds. I have these same reactions every month. I have taken 4 pills and seems that the side effects get worse each month when I take the pill. I will never take another Boniva regardless of the consequences. I can't believe a doctor would prescribe this medication for the prevention of bone density loss when they have to be aware of all the side effects. If you have never taken this type drug, please don't start. Exercise, diet, calcium and vitamin D may not prevent osteoporosis, but it will certainly help more than the side effects of these drugs on me.

Posted by Kathy on October 9, 2007 7:33 PM | Permalink | Reply

This is my second week of Boniva my joints and muscles are in constant pain, am unable to walk without assistance, cannot dress myself, have constant diarrhoea, my ribcage is so sore I am unable to breathe properly, I am having a job taking my Asthma inhaler. My fingers are swollen I have a sore throat and I feel generally very unwell, if it wasn't for my Husband I think I would have curled up and died. Please beware, do not take this awful drug until you have researched it thoroughly. When I have recovered from this terrible pain I am going to exercise regularly, eat healthily and take vitimin D, I will never touch this drug again

Posted by Barbara Turner on October 13, 2007 2:34 AM | Permalink | Reply

Does anyone have a diet for Ostoporosis that works instead of taking a drug like Boniva? I have only taken boniva for two months with only a few adverse symptoms. But after reading all the info on this site have decided not to take it. Recent bone density tests show that I have significant bone loss. I am 55 years old.
Calcium supplements?? Kind and how much.....Vit. D??? how much and what kind is best... I REALLY need some help here...I'm not trusting my Doctor's opinion on this.... Thank you...please email me at lininhim@aol.com

Posted by Lin on October 16, 2007 4:27 PM | Permalink | Reply


My doctor recommended for Boniva. I've been taking
2 Calcium w/ Vitamin D3 for years. So I researched
all the information about Boniva that affect most of the
people side affects. Doctor didn't tell you all the bad things.
So I tried to research all the Vitamin D foods. Sun, soy milk,
yogurt( not all yogurt has Vit D). I used Organic
Stonyfield lowfat, pour some Hazelnut creamer. Salmon,
Sardines, tuna fish, orange juice w/ D, exercise. I hope this
will help you. Enjoy all the foods you can.

Posted by Anonymous on April 12, 2013 12:17 AM | Permalink | Reply

Has anyone developed any cancer after taking boniva?

Posted by Anonymous on October 18, 2007 6:07 PM | Permalink | Reply

English in not my first language and it's difficult to express myself but I want to share my experience with you. I am 49 years old and I just had a bone density test because my mother has ostheoporosis and I was worried the same could happen to me. The results showed I had osteoponia. My doctor prescribed Boniva and last week I took my first pill. I was concerned about other side effects (heartburn etc.) but I was not ready for what has been happening to me for the last week. 12 hours after taking the medication I felt like a 90 years old person. All my body hurt, I could feel the pain in every muscle of my body. The first 2 days I could hardly walk. I feel better now but not like myself. I NEVER had any kind of pain in my body and now after taking the medication I feel worse than ever. I wish I had read all your coments before taking the medication because doctors don't tell you these things.
My question is, what can I do? I know exercise and a healthy diet will help but this is not going to change the fact that I already have osteoponia and I am only 49 years old. Please tell me any information that can help. Thank you!

Posted by Maria on October 19, 2007 9:03 PM | Permalink | Reply

I am 41 and just took my first dose of Boniva Thursday Morning. By noon that day felt like I pulled something at the gym, by that night could not get off the couch without help. At 2 am Friday morning I was hurting all over felt like I had the flu. Friday could hardly walk and could not make a fist! I feel better today (Saturday) but still have pain in my legs. Called my doctor and was told had the side effects because of low Vitamin D level. After reading these entries this should be shared with patients. Boniva should be taken off of shelves till more research is done!

Posted by charlotte on November 3, 2007 4:49 PM | Permalink | Reply

DO * NOT * TAKE * THIS * DRUG
I am 56 years old, not (much) overweight and in good physical condition.
DO * NOT * TAKE * THIS * DRUG
In July 2007 I took my second Boniva pill, although I am only diagnosed with osteopenia. I bought all that junk about breaking bones threatening my style of life, etc. My Dr had preached to me about it and had "pushed" actonel which I took for about 4 months prior to switching to Boniva. I learned about it, of course, from the pharma-giants commercials with sweet Sally Field pitching it.
DO * NOT * TAKE * THIS * DRUG
I took the Boniva pill first thing in the morning, as prescribed and by mid-morning I started feeling a little nauseated. But by mid-day my rib cage & sternum had started to ache and I felt as though I couldn't breathe without rib pain - just like it must feel to have a BUNCH of broken ribs. I was in pain EVERYWHERE. I had such weakness in all my muscles, I could hardly stand up and had to have my husband assist me in getting out of a chair. I felt as though I could feel every bone independently and each one hurt. It almost felt like the flu with the muscle aches, but I had no fever or other symtoms of flu. This hit me like a TON of bricks!
Amazingly, even though I was suffering so, everything was worse the next day.
I was walking like a 100 year old woman, shuffling and taking itty-bitty steps because it hurt with every movement in all parts of my being. I felt as though my skeleton could NOT support me at all. I could not bend down. I could not breathe deeply. With each breath, I gasped and whimpered in pain. There was not one part of my body that did not ache.

DO * NOT * TAKE * THIS * DRUG

I knew something bad was wrong and I was SCARED.
I was already deathly afraid I would not get back to normal ever again. Usually a very calm person, I began to freak out! I started to research about Boniva's side effects (should have done that before!) and found lots of bad side-effects. Some worse than I was having. I was away from home when this happened - in another state, but heading home 2 days later. THAT was a painful 8-hour drive. Even the seat-belt shoulder strap hurt against my chest.
From another sufferer on another website I learned about taking charcoal to abosorb POISONS in your system. It felt exactly as though I had been POISONED.
My DR was surprised at the reactions I had, telling me about all the women who were helped by Boniva and how many fewer broken hips he had seen in his practice. That didn't make me feel any better, that's for sure, but I recognize that I have taken other prescriptions in the past for other things which had no bad effects on me -and those same drugs were probably poison to others.
He prescribed some "old-fashioned" tylenol with codeine for my pain. Looked at my bone scans (again) and said maybe I didn't need to take this (or Actonel?) and should just go with calcium supplements. (duh)
Even though I felt I never wanted to fill another prescription, I took the pain pills AND the charcoal. I was able to quit the pain pills in about 3 days, but kept up with the charcoal for about 8 days. About 3 weeks after taking that dose of Boniva, most of the pain had gone away. Now, 4 months later, I occasionally feel that same muscle weakness that was one of the first symptoms, but those events are (happily) fewer and further apart.
DO * NOT * TAKE * THIS * DRUG is my advice to ANYONE reading this.
I am grateful for the support I received from other victims of this drug and at every opportunity, I am sure we ALL tell others about this poison.
DO * NOT * TAKE * THIS * DRUG

Posted by Andrea on November 12, 2007 7:57 PM | Permalink | Reply

my name is Regina ,i have already posted ,just wanted to tell everyone the charcoal DOES work ,1 yr.& 11 mo. ago this all started & yesterday was my first day with NO pain meds. i still walk funny but that horrible pain all over my body is gone .i am using 1000 mgs of fish oil per day now . the drug cos. that make these kinds of poison ,are going to take another look at them next yr. it isnt our health ,its the lawsuits that is making them do this .everyone this stuff WILL wear out of your body .bestgrandma316@yahoo.com

Posted by Regina on November 14, 2007 3:49 AM | Permalink | Reply

So glad I found this site...at least there's hope...I started taking Boniva in July 07. In Oct started having knee pain (both knees) that ranges from burning to pain. IT happened relatively suddenly and is getting worse as time goes on. I took another Boniva today, but finally read the warnings. Last week my doc said it's probably a podiatric problem, but I didn't believe him. This could be it. I've never, ever had knee problems, and am a honest-to-goodness athlete (ballet, hiking, swimming). Wish me luck, since I'm headed back to the doctor. At least I know it could be something other than RA or Lupus...Prayers and good wishes to everyone.

Posted by ithurtsoveryfast on November 16, 2007 10:11 AM | Permalink | Reply

I to, am suffering from pain in my both knees, I started Taking boniva, back in 08, 7 months into taking this poison pill, i started feeling pain in the back of my knee, i had my suspicions, and stopped taking this awful pill, i now am suffering from knee pain in both my knees, is there anything i can do to alleviate this pain?
i too am warning all women....DO NOT TAKE BONIVA,

I STILL SUFFER from knee pain....

Posted by sera giordano on April 9, 2013 8:29 AM | Permalink | Reply

I was asked to post a comment. I took Boniva for 3 months. I first noticed a pain in my chest. It would come and go at first and then stayed the majority of the time. Since I have reflux, I contributed it to that. I also noticed that I was having a shortness of breath. I woke up on a Saturday morning, with a sharper chest pain, extreme shortness of breath and tingling in my hands and fingers. My husband called my nephew, who is a paramedic, and was advised to call 911 and get me to a hospital. I was treated as iff I was having a heart attack and was given every test possible. My heart was fine. I, of course, got off the Boniva, which was the only new thing I had been taking, and with a couple of weeks, my symptoms had gone away. It was very scary for me and my family. I am a 57 year old woman with Osteopenia. Since then my doctor recommend a nose spray called Miacalcin. I have been on that for almost a year and my latest bone scan showed increased bone density. I have had no side effects from the nose spray.

Posted by Jan on November 20, 2007 6:25 AM | Permalink | Reply

I was prescribed Boniva after having a bone density test that showed miinimal signs of osteoporosis. I was otherwise a healthy female with no other medical or physcial conditions. The day after my first dose I noticed the bottom of my feet being tender and my knees a little sore, but didn't think much of it since I work in the garden a lot. The pain in my knees and back got progressively worse with each month that I took another dose. My fingers and knees felt stiff, swollen and as if they were full of fluid when I would bend them. My back would hurt when I tried to stand from a sitting position. I continued to take the Boniva for a period of 5 months, thinking I just needed to adjust to the meds. It got to the point I could not turn over in bed, I had to push myself up when getting up from a sitting position. If I squatted at the knees it was impossible to get up without pulling on a shelf or having a stick in your hand. I could not stand up straight for several minutes after getting out of the car after a short 15 minute ride. I would walk like a cave man for several minutes hunched over due to lower back pain and felt everyone was staring at me. I finally realized that Boniva was detrimental to my health and was not a good thing to be taking. It took about two months for me to get back about half of my normal range of motion and got progressively better as the months went by. I am now back to my old self and it has been over a year since I stopped taking the Boniva. I was 51 at the time I began Boniva, but it made me feel like a 90 year old bedridden patient. I do not recommend this to anyone. And to the person who anonymously posted a comment on askapatient.com about us whining about a little bit of pain and to just take the meds, you need a mental evaluation. I further recommend everyone who has problems with Boniva to file a complaint via the FDA website.

Posted by Anonymous on November 22, 2007 7:47 AM | Permalink | Reply

I took the second dose of Boniva on thursday of this week. On friday I had flu symptoms and by saturday I could barely walk. Crying is rarely my style but the pain made it impossible to stand upright. I feel as if I've aged by 20 years. I shuffle. I cannot stand without help and my lower back is killing me. I was given Boniva as part of breast cancer treatment. During the first dose I was recovering from breast surgery and wrote off the symptoms to a "normal" recovery. I also have an urge to urinate frequently; great fun when you can barely shuffle to the bathroom. As I type this my hands are swollen and I'm constantly drinking water to overcome a dry throat. I know that these side effects are related to Boniva because I've been keeping a recovery diary for the breast cancer. I agree with the rest of you--Boniva is poison. I've taken my last dose.

Posted by jcd on November 22, 2007 8:02 PM | Permalink | Reply

So many things that I am reading are the exact same things that I intended to report. Bonvia is BAD!!! How can we get the word out to other unsuspecting people who innocently take their Dr's advise and take this medicine? I was diagnosed with osteoponia and I took my 1st pill in September. The bone pain started right away but because I have Fibromyalgia my dr. said that it was probably a flare-up and I trusted him but also I knew deep down that the pain was different. I took my October pill and I became bed bound. The bottom of my feet burned and it burned all the way up to my hips and especially in my pelvic bones. I couldn't walk and I had my bouts of crying. I went to the emergency room at a local hospital and they just brushed my symptoms aside as Syatica and sent me home, I had to ask for a pain shot and pain pills but neither of those helped. My family tried to help but it is hard to get them to understand the pain. Only you, who have also taken the pill know what I am talking about. My teeth became loose and my fillings started falling out. My jaws hurt so bad that I couldn't eat. The pain went up to my ears and my eyes had sharp shooting pains. I feared that I was going blind. I shuffled to the restroom and back to the couch for weeks, I felt like I was 90 years old. My chest hurt and I thought I was getting phnemonia(sp?). Still my doctor said it wasn't Bonvia so I took my November pill like a good girl and when things got much worse I found a dr. for a2nd opinion who also said it wasn't the Bonvia. Then I finally took control of my life and told them I wasn't taking Bonvia again. My next pill is due December 2nd but it will be a cold day in h--- before I consider taking anything for my osteoponia. What kind of life is worth living if that pill comes with daily bone pain. Hasn't anyone informed the medical profession of these terrible side-effects and why don't they listen to us, we are the ones with pain. I'm feeling better now, I am on my last week of the November pill and as I said no more for me.

Posted by Bonnie Powers on November 26, 2007 4:04 PM | Permalink | Reply

I have had two injections of Bovina over a period of 6 mos and I had severe head pain that even hurt when I chewed food. It came on quickly and was so bad I couldn't lay my head down, I had to sit up to sleep. The pain was bad & lasted 4 days and 4 nights. I am convinced it was Boniva. I am not taking this drug again.

Posted by eleanor rosenow on November 29, 2007 3:36 PM | Permalink | Reply

It's nice to know I'm not crazy!!! Took my 1st Boniva sample pill in July 2007. Felt flu-like symptoms, took again in Aug., same symptoms, skipped Sept.(out of country on vacation) Awakened on vacation with wrist pain, no known injury, thought I had slept wrong. Took Oct.pill, same symptoms, but developed swelling in left index finger and SEVERE left shoulder pain, couldn't abduct my arm from body!! Again, no known injury. Saw an ortho doc,told me to stop Boniva. Started Medrol dose pack (steroids) with immediate relief. Got no relief from ibuprofen or Aleve. Had immediate improvement on steriods, but approx 3 weeks after they wore off, pains in left hip, right knee, both feet(metatarsal) joints became swollen, difficult to walk. Then right wrist pain returned worse, swollen, extremely painful, fingers swollen, unable to grip.Started second steroid pack with relief, but know I can't keep taking these, as they weaken the immune system and leave you susceptible to infections,not to mention bone loss which kinda defeats the purpose,huh? I was an active, exercising, hardworking R.N. and now I feel wretched. I went to a rheumatologist, who completey dismissed the Boniva issue.(guess the Boniva rep was taking them all to lunch on Friday). I was reading a pamphlet while waiting in lobby to be seen, of course, Sally Field and Boniva were right in the center advertisement. I knew this visit would not go well. Guess nobody wants to stand up to "big drug companies" and do the right thing. Rheumatologist tried to dx me with Rheumatoid Arthritis like it was nothing, and put me on all these clinical trial medications. Whatever!! As sure as I'm typing this, I know what has precipitated my pain. Please do not take this medication. I thought I was getting a jump on things, I am 44 with osteopenia. I too will stick to exercise and calcium. If I could turn back time...

Posted by Teresa on November 30, 2007 4:25 AM | Permalink | Reply

My doctor prescribed Boniva to me very casually. After taking this medication for 4 months, I began to get leg cramps each night, I had trouble stooping and getting up. I felt like a 90 year old woman. I did not realize what was happening until I researched Boniva and saw all the same symptoms on this page. I threw my last Boniva pill in the trash for this month, I agree, this is poison to your system. Women should not be taking this drug, Women pay attention to what you are puting into your body.

Posted by Marrty Cummings on December 8, 2007 3:46 AM | Permalink | Reply

I took Fosamax and experienced moderate pain in my joints for two days and stopped taking it. The doc and I decided to try Boniva. Within 12 hours I began having the same pain as with Fosamax. By the next morning I was so sick with pain all over with any movement and fever and some nausea. I have missed two days of work and don't know how long this will last. The reason I was so willing to take these medicines is the xray of my bone density test. It makes my heart race when I think of it. I am a nurse for 27 years and I know what hip fractures do to a person's quality of life. I am not going to take these meds again and will now persue whatever I can to increase the integrety of my skeleton. I am only 58 years old. I am at my computer because I cannot go to work today because of the severe pain and flu-like symptoms.

Posted by Caroline O'Brien on December 18, 2007 10:50 AM | Permalink | Reply

I am writing this about my Father a healthy, still working 73 year old, until he took his second dose of Boniva in August of 2005. He had excrutiating pain in the joints and muscles that moved throughout his body. It got so bad he couldn't even walk at times. Chest pain, heartburn, trouble swallowing, cold sores, upset stomach, and other symptoms. He was in and out of the emergency room and hospital so many times I couldn't keep track. He had all kinds of tests and nothing showed up. He was on all kinds of pain medication and nothing would help. He couldn't sleep, eat, sit or lay comfortably. He was diagnosed with multiple myloma late September. This was also the wrong diagnosis. He was then diagnosed with acute leukemia which is what he died from October 29, 2005. I don't know if the Boniva caused this or just brought the disease out. As I said my Father was healthy and working full time before he took Boniva and he also had regular check ups. I have never seen anyone in such pain! I asked the Drs. from the beginning if the Boniva could have caused all of this pain and they wouldn't even talk about it. I had done some research and found out about the side effects but no one would even talk to me about them. No one can make me believe that if my Father hadn't taken Boniva we would still have him with us! Please do not take this drug!

Posted by Pamela Mathis on December 28, 2007 8:30 AM | Permalink | Reply

I am a very active, healthy 55 year old woman. I took my first Boniva tablet in October 2007. Within 24 hours I had debilitating muscle pain all over my body and thought I had the flu. It lasted for about 10 days. The next month I experienced the same thing and thought it was very unusual that I would have the flu 2 months in a row but still did not contribute it to the Boniva. After my December dose, I was in so much pain (and Ibuprofen did not even phase the pain) in my lower back and legs that I could not stand for very long. I went to my doctor and he said that he thinks it may be kidney stones since I had blood in my urine. That was 4 days ago and the muscle aches in my legs are just beginning to ease slightly. I started researching to see if anyone else had ever experienced such muscle pain after taking Boniva. I was shocked but relieved when I read this site. I am convinced that it is the Boniva and have taken my last pill. DO NOT TAKE THIS DRUG. I have never had a reaction to any other drug in my life. This has been a nightmare!

Posted by Barbara Stegall on January 3, 2008 9:09 AM | Permalink | Reply

I had my first Boniva mthly pill Dec 1st..no problems. Jan 1st took the pill and by Jan 2nd I could hardly move and get out of bed. I felt like a mack truck had hit me as I ached all over and inside and had a stiff ache, stiff shoulders and tightness in my chest and back.

I have always done at least 1 hr of yoga and stretching and 40 min of walking and 30 min of weight lifting (age 56) but as of Jan2nd I can not do any of these let alone the simple task of bending done to go to the bathroom. Can't even raise my arms to comb my hair...

I know its that Boniva and will never take it again.

Can someone tell me about the CHARCOAL mentioned in some posts. I dont have any stomach/upset problems - just the muscle and joint pain.

Posted by Anonymous on January 3, 2008 2:46 PM | Permalink | Reply

I had my first Boniva mthly pill Dec 1st..no problems. Jan 1st took the pill and by Jan 2nd I could hardly move and get out of bed. I felt like a mack truck had hit me as I ached all over and inside and had a stiff ache, stiff shoulders and tightness in my chest and back.

I have always done at least 1 hr of yoga and stretching and 40 min of walking and 30 min of weight lifting (age 56) but as of Jan2nd I can not do any of these let alone the simple task of bending done to go to the bathroom. Can't even raise my arms to comb my hair...

I know its that Boniva and will never take it again.

Can someone tell me about the CHARCOAL mentioned in some posts. I dont have any stomach/upset problems - just the muscle and joint pain

Posted by Ali on January 3, 2008 2:47 PM | Permalink | Reply

I took my first and last Boniva pill on New Years Day. By the afternoon I had started feeling nausea. I couldn't sleep that night so I got up and took some Tylenol. The next morning I felt like I had the flu. I was aching all over and had chills. I finally got up around 3:30 p.m.,went into the kitchen and sat down at the table to try to eat something. I began to feel weak. I passed out and fell to the floor. Luckily my husband was at home. It has been 3 days since taking Boniva and my stomach is still cramping. I will never againg take Boniva and will tell all my friends about my experience. It's a shame the doctors do not know or say they have never heard of such side effects.

Posted by Faye on January 4, 2008 10:33 AM | Permalink | Reply

After reading all the side effects, I couldn't believe my emergency room visit was actually caused by Boniva not pulling a chest muscle. I was in such pain every time I took a breath, my husband rushed me to the Hospital. They couldn't find a thing wong. A couple of months later I was in the bathroom and my back had a spasm so bad that again my poor husband got me into bed and it was so painful, luckly, I had some knock pills from my hospital visit.

Yesterday, I ended up with acid indigestion which I notice every time I take Boniva it happens a couple of days later. Nothing can get rid of it. My yogurt or just a sip of cream just doesn't work. I do not want any dependency on anticids. Two years of this is enough, I will take a bone density test in March to find out if my border line problem is solved.

One thing for sure, I won't miss taking Boniva every month. Just opening up that stupid package at 6:00 a.m. and waiting an hour to get my morning coffee.

If my bone density test is up to standard, what is that charcoal thing and is Miacalcin through the nose any good?

Bless you all for making me realize this pill is dangerous. I can't believe I have put up with this for almost two years!!!!

Kim B.

Posted by Kimberley Bohlmann on January 9, 2008 4:28 PM | Permalink | Reply

I have taken 3 or 4 doses Boniva. I have experiences muscle cramping in my feet and hands for about 3 months. Its getting worse. I cant even hold a doughnut in my hand long enough to eat it without my hand drawing up. Occ at night I will have leg cramps. I also have back pain, but since the pain is not significantly changed, I dont necessarily asst it w/ the Boniva. My question: Has anyone else out there experienced hand or foot cramps?

Posted by P. Moore on January 14, 2008 10:25 AM | Permalink | Reply

About two years ago, I was offered two free Boniva pills by my physician at that time. I took two, and when I went to pay for my first perscription of them, our tiny ss. budget could not afford them. Thank God! That is probably the only reason that I am still alive. That is, if you could call it a "life." I had symptoms immediately after taking the first pill, but my physician insisted I had internal shingles, even tho I had never had the requisite chicken pox in my life. By the second month, I was a sick person! Dying, in fact. I spent about a year lying wrapped in an electric blanket, screaming and moaning in agony. Shortly, I had realized it was the Boniva causing all this, but it was too late. Now, two years later, I live in constant, agonizing pain that never relents. Probably will die eventually, when my body just becomes too tired to fight the battle any longer. I do not even have a physician any longer. The doctors don't like patients like me; it makes their records look bad. And when my husband was operated on in July for colon cancer, stage 4, he endured a nightmare of cruelty and abuse from one nurse in the hospital. She did damage he will carry the rest of his life. The medical world closed ranks around her, and has protected her from any consequences from the crime she carried out on my husband. And we suddenly found ourselves both "lepers" as far as the medical world was concerned. I know they sense medical malpractice suits in the air, and their solution to that is to simply refuse us any treatment. I spend several hours daily on the 'phone, trying to find a doctor, ANY doctor, who will see us. I never knew about the world I now call the "world of medical politics" and the horrible ramifications it has. I barely exist now, live in pain always, terrible pain, and am crippled and so disabled I cannot live even a semblance of a normal life. My husband, at a time when he needs my help the most, instead is having to assist me in just surviving. Pray for us that we will find a doctor who is willing to see and treat us. I wish I could say this better, but I have found out that PAIN RULES. To do this posting has taken all the strength I have for this day. Boniva is POISON. There is never a valid reason for ingesting it into your body. It is simply a money maker for all involved in peddling it to the ingnorant, unsuspecting consumer. If I can prevent it from happenig to even one person, then at least my death will have served a pupose.
marty

Posted by Marty Davasher on January 20, 2008 7:30 AM | Permalink | Reply

Wow! I just got my first two sample pills from my doctor. Thank goodness for this site! I am very sensitive to all medications, but I was going to try this for a month and see what happened. I already have a lot of pain from fibromyalgia. The last thing I need is more pain. Thanks for all your comments.

Posted by Marnae on January 23, 2008 9:12 AM | Permalink | Reply

I also took a free sample pill of Boneva and thought I was dying. I took it on Monday and by Tuesday afternoon I had to leave work because I felt horrible. It feels like I have the worst case of flu. Every cell in my body aches and I have no strength. When I called my doctor she said it was very rare for anyone to have these side affects and that they should clear up in 3 days. They better!! I will never take this pill again.

Posted by Suzy on February 6, 2008 4:20 PM | Permalink | Reply

This is amazing. I have been on Boniva for about 9 months. I was diagnosed with Osteopenia a few years ago and started taking Actonel weekly. I saw Boniva advertised and thought that would be convenient, so I asked my doctor if I could take it instead of the Actonel. She gave me a prescription. To complicate matters, I have Fibromyalgia and Chronic Myofascial pain. At first, I thought I was just having a bad flare of my FM. I have always taken the steps instead of the elevator at work. I started having such pain in my legs, I could no longer climb the steps. Just walking in general causes pain in my legs. I have pain in both my arms, my hands and my feet, knees, both hips and ankle joints, my shoulders, elbows, wrist, you name the joint, muscle, tendon, ligament, it hurts. I began to wonder after hearing someone talking about the Boniva causing these same symptoms and she did not have FM. I believe it is causing them and it will be time for my monthly dose in a few days, but I don't think I am going to take it, just to see if I feel better. Believe me, if you have FM/CMP like I do (21 years), you have enouugh pain, without taking a medication that causes more pain in the same areas as FM/CMP and like someone said seems to attack the weakest areas of your body. I am glad I found this site.

Posted by Donna on February 7, 2008 3:15 PM | Permalink | Reply

This is amazing. I have been on Boniva for about 9 months. I was diagnosed with Osteopenia a few years ago and started taking Actonel weekly. I saw Boniva advertised and thought that would be convenient, so I asked my doctor if I could take it instead of the Actonel. She gave me a prescription. To complicate matters, I have Fibromyalgia and Chronic Myofascial pain. At first, I thought I was just having a bad flare of my FM. I have always taken the steps instead of the elevator at work. I started having such pain in my legs, I could no longer climb the steps. Just walking in general causes pain in my legs. I have pain in both my arms, my hands and my feet, knees, both hips and ankle joints, my shoulders, elbows, wrist, you name the joint, muscle, tendon, ligament, it hurts. I began to wonder after hearing someone talking about the Boniva causing these same symptoms and she did not have FM. I believe it is causing them and it will be time for my monthly dose in a few days, but I don't think I am going to take it, just to see if I feel better. Believe me, if you have FM/CMP like I do (21 years), you have enouugh pain, without taking a medication that causes more pain in the same areas as FM/CMP and like someone said seems to attack the weakest areas of your body. I am glad I found this site.

Posted by Donna on February 7, 2008 3:16 PM | Permalink | Reply

I'm 59, in good health, relatively active. After my last bone density scan revealed some osteoporosis/osteopenia, my GYN prescribed Boniva. I've taken it twice and felt fine...or so I thought. I recently developed dry, itchy eyes, my first ever fever blister, and a terrible dryness in my mouth. A dentist told me that I have no oral infection, but that my salivary glands don't seem to be working right. I have
an appointment to see my doc, but after reading all the comments on this site, I'm convinced that Boniva is the culprit. So, add more symptoms to the list of side effects. I'm told that chronic dry mouth leads to all sorts of dental problems, so I hope that this resolves itself. Any idea of how long it takes to get this poison out of one's body?

Posted by babara on February 12, 2008 6:07 PM | Permalink | Reply

I am a 52 yr old female recently diagnosed with Osteopenia. I took my first Boniva pill Sunday morning, and was awakened at 4 a.m. Monday morning with severe pain in my back under my shoulder blades. I hurt all day, even above my breast. I wondered if I was having a heart attack or getting shingles. As soon as I laid down that night I began having muscle spasms across my back that took my breath away, moaned all night. The next morning when I got out of bed, I could barely breathe because of the spasms. I managed to go to work but as soon as I returned home, I laid down and immediately began again with the constant muscle spasms. I certainly am not looking forward to trying to sleep tonight. I think I will try the recliner and a heating pad. I am going to try taking Benadryl to counteract the effect of the Boniva. Tomorrow I will be seeing the physician who prescribed Boniva and I am going to tell about my symptoms and that I will never take this drug again! I do have a Vitamin D deficiency and from reading the other comments, this might have had something to do with this reaction.

Posted by ginger on February 19, 2008 5:24 PM | Permalink | Reply

My doctor started me on Boniva on Feb. 21, 2008. I was on actonel a few years ago for three years but the bone density scan was read wrong. I was starting to have skin problems and joint problems so stopped it. The last two bone density tests I get a call from his nurse that just take calcium and vit. D. All of a sudden, I have to go in and he shows me no report. I am chemically sensitive to most meds. He didn't show me the report just talked and said I had to take this because Sally Field takes it. I got a copy of my scan and it doesn't make any sense.The lady taking the test was doing things they never did before. She couldn't get me right on the table. He was the most uncomfortable test I have ever had. She was new, just got out of school. He has never gone over any of the reports in the last five years so I am going to get copies. I have a terrible taste in my mouth, I have started itching really bad and can't stop, I am getting hives and feel so tired and sore. Can't do what I want. I suffer from depression and anxiety and both of those are getting worse. But the itching is driving me nuts. I am not going to take this anymore. My doctor won't listen. Says his way or no way. I already have tmj and jaw pain, but the last couple of weeks, the throbbing in my ear and neck pain at night and I am so congested I can't sleep. I want to go naturally. I work out in the yard, do trimming, sawing branches, painted the outside and inside of the house and am not sedentary and I have been taking more than 1,000 mgs of calcium and 400 of D. I asked him about testing me for vitamin D. He didn't listen. I asked him about magnesium and vit. k. He knew nothing. I have gerd and have had an hiatal hernia and am on prilosec. I am very scared on what the long term of this poison is. I want it out of my system and I won't take it again. Think I need to find a new doctor too.

Posted by Tina on March 2, 2008 1:25 PM | Permalink | Reply

I had a Boniva infusion on Tuesday. Mild flu-like symptoms immediately followed along with fatigue and a foggy-headed, disoriented feeling. It's now Friday and the foggy-headedness and fatigue haven't subsided. Has anyone else had this?

When I tried oral Actonel (one pill) this past summer, I had the same thing. There must be something in this class of drugs I'm reacting to.

What else are people doing to combat osteoporosis? I lift weights and exercise consistently, take calcium with D and magnesium, and lead a healthy life-style. There must be a better way to heal osteoporosis than taking drugs. Help!!

Posted by Nancy on March 14, 2008 9:34 AM | Permalink | Reply

I started my first dose of Boniva last Saturday 3/8/08. Within 8 hours I experienced extreme leg pain in the lower legs, Tibia. Peridoically, the pain would progress to the other extremities. Chills and fever were also present. Called the number on the flyer that encapsulates the poison. Call 1-888-MY-BONIVA, I called. Count the digits - see if you get a response. Still in pain, my doctor says it will subside in a few day. I'll let your know.

Posted by Judith Barr on March 14, 2008 2:27 PM | Permalink | Reply

I started Boniva on January 12, 2008 and have taken 3 doses with the last on March 12. Thursday evening March 13, I had an onset of stomach pain and tenderness along with sudden bowel emptying. I never had diarrhea or vomiting. At times I felt sick to my stomach but pain was the prominent symptom. No esophagus indigestion but when I tried to eat or drink I had pain as it reached the area below my ribs. It was hard to get to sleep and I woke up several times during the night from pain that built up in strength and then would die down. Pain was in the area surrounding the belly button (which was tender to the touch) spreading to just under the ribs. I also felt the inside of my intestines burning as if on fire, extremely irritated. I noticed pain would come and go about every 15 to 20 minutes, slowly increasing in intensity and then dying down. I also had headache everyday. On Friday, I drank water but could not eat. Pain worsened so I stayed in bed till evening. I was sick over the weekend but it got a lot better Monday morning so I went to work. I still had pain in the center on the rib bone above the belly button as well as tenderness and slight radiating pain from the belly button to the ribcage but it was much better. While I was sick I did not exercise. That night, I decided to take my dog for a walk and do my weights as I only had slight indigestion and slight same area of pain (which has persisted from the start), but I was aware that I had slight pain all over, which made me think my sickness must have been flu, even though I have never had those symptoms with flu. When I woke up Tuesday I could not get out of bed. My neck was so stiff I could not move. It felt like it was fused from my neck to just above my hip area and that I would not be able to bend at all since it was so stiff. I was sore in my joints, muscles and some bone with extreme tightness across the middle of my back, low back, right foot underneath, and intense pain in both shoulders, the pockets on each side of my neck and shoulder area. I hurt everywhere except the hip and pelvic area, legs, left arm, right lower arm and left foot. I could hardly move. I was afraid to take pain medicine due to my stomach but the pain was bad that I took Pain Aid. It helped enough that I could do my job, but still hurt. Every morning since the Monday, the 17th I wake up and can hardly get out of bed. I can’t even sneeze when I need to. I called Boniva and they connected me with Roche Lab who said that my stomach and joint/muscle pain could be side effects from Boniva and that I should see my doctor. They apologized that I had to go through this. I asked about another dosage and was told of a daily dose Boniva but that the same symptoms occurred with the daily dose in others with similar side effects and would probably persist. They said the pain would probably go away in time if I stop Boniva.

Posted by Nancy Davis on March 22, 2008 1:08 PM | Permalink | Reply

My name is Bonnie, 59 yo, live in Seattle and in good health...so I thought! It is 4 AM and I have never been commented on a site before, but I am in such pain that I can't sleep and hoped to have my comments read. I also feel like I have been poisoned.

I am a breast cancer survivor and I am scheduled for a Bone Scan on 3/24/08, as my whole body aches, which started in my right wrist a month ago, but I thought it was from working out.

Years ago, I was told I have Osteopenia and was taking FOSAMAX but it gave me "heartburn" so my doctor casually prescribed BONIVA 6 months ago. I switched doctors, and both seemed little concerned about BONIVA, but my new doctor causally commented last week there has been some "reports" that it may cause "muscle pain”, as she can’t figure out what is wrong with me after taking blood and urine tests for 2 weeks.

I am an active real person, but this pain is keeping me awake at night and ADVIL does not seem to help my joints. BEN GAY covers up the pain some, but my pain hits me with "hot spots" all over my body, from my brain and into my breasts. My right wrist, arm and shoulder are the worst!

I will report back to this site after my bone scan, but will look into "CHARCOAL" at the health food store if you ladies think it might help. Thank you!

Posted by Bonnie Taves on March 23, 2008 6:02 AM | Permalink | Reply

Count me in for a class action suit. I have only taken one Boniva, but was due for the second when I found this site. I have been having unusual aches in my arms and legs... did not make the connection until I read this site. I have had adverse reactions to Fosamax, but it irritated my stomach -- Boniva didn't do this. But I have been aching with no cause, so I do believe it must be giving me this adverse painful symptom. I won't take it again. Thank you for all your comments, I know you have saved me additional pain.

Posted by Barb Gephart on April 1, 2008 8:22 PM | Permalink | Reply

I am a healthy woman recently diagnosed with osteopenia. I specifically asked my doctor for Boniva, as I have always been a Sally Field fan and liked the idea of a once a month pill. I took the pill yesterday morning and last night after going out to dinner with a friend, I felt like someone was pressing a knee on my chest. I couldn't sleep because of muscle and back pain and the overwhelming weight on my chest. Foolishly, I believed I had overdone my stretching and yoga yesterday, until I googled Boniva and read the comments on this site. I now understand that the monthly pill will have a long half life, resulting in many more days or weeks of pain. I will not take it again and will try other methods of rebuilding bone mass. I was looking forward to a long run on this beautiful sunny day, but instead I'll probably only be able to lie in bed. Hope the pain does not get worse.

Posted by paula on April 3, 2008 6:51 AM | Permalink | Reply

Took 1 boniva -- threw up/and diarheea followed by worst pain in back spasms.
Dr. said "coincidence". Took second dose/second month---ache all over (dr. says "yard work")???
Who should I believe??

Posted by Kim on April 5, 2008 11:34 AM | Permalink | Reply

Regarding #71 --- You mean, No pain…no gain??????? What kind of person are you???? The only reason why this product hasn’t been pulled from the market yet is because people haven’t put two and two together. ….. It’s a moneymaker!!!!

Posted by Kimberley Bohlmann on April 5, 2008 5:43 PM | Permalink | Reply

I started taking boniva February 30th and now developed bronchitus. I have asthma so I did not think of the side effects to Boniva, but I'm having trouble getting up off the bed or couch and have had cold chills since the day after taking it, running a low grade fever and developed sores in my mouth. All this started the day after so I googled boniva side effects. I am 59 and will never take this medicine again; it is not worth it. The only reason I am posting this is to maybe help other unsuspecting women or men know about the risk.....can't wait until I get this "stuff" out of my system. Sorry, but I'm coughing up phelgm (can't spell it) what in the world causes the muscus problem. Sincerely....

Posted by Shar on April 7, 2008 1:33 PM | Permalink | Reply

I started taking boniva February 30th and now developed bronchitus. I have asthma so I did not think of the side effects to Boniva, but I'm having trouble getting up off the bed or couch and have had cold chills since the day after taking it, running a low grade fever and developed sores in my mouth. All this started the day after so I googled boniva side effects. I am 59 and will never take this medicine again; it is not worth it. The only reason I am posting this is to maybe help other unsuspecting women or men know about the risk.....can't wait until I get this "stuff" out of my system. Sorry, but I'm coughing up phelgm (can't spell it) what in the world causes the muscus problem. Sincerely....

Posted by Shar on April 7, 2008 1:34 PM | Permalink | Reply

I am a 52 yo RN for 16 years.
There are several meds out that don't have the severe side effects of this drug.
I have been on fosomax for a few months and have had no side effects at all.
The indigestion one may get from that is relieved if it is taken with food or lots of water and yuo remain in an upright position for 30 minutes.
The Vit D deficiency- in the "cloudy " parts of our country....I guess I may move to a sunny place...
Good luck everyone, as we get older and hopefully wiser.

Posted by Carla Smith RN on April 8, 2008 5:46 PM | Permalink | Reply

I was on Boniva for 1 year. I had severe pain in my legs and severe gastro problems. I also had chills and cramps in my legs and feet. I told my Doctor about all these issues and she just blew them off. The reason I know she blew them off was the letter she sent me after my last bone density test. It said to continue to take my Boniva and my calcium. Before taking the Boniva I reminded her that I was prone to gastro problems. She recommended Nexium to be taken along with the Boniva. Now I have found out that Nexium can reduce the absorbtion of calcium. I feel like I just wasted my money and a year of my life taking this stuff. I still have gastro problems, flu like symptoms, chills, and leg cramps. I also know that I should have had a blood calcium test before taking Boniva which I know I never received. I feel like such a fool for not doing my homework first and just believing my Doctor's word.

Posted by Pat McCracken on April 17, 2008 7:43 AM | Permalink | Reply

I took my first boniva pill march and had some jaw pain and some pain in my joints. I was on a cruise in the caribbean and it was time for my next pill, so I took it first thing in the morning with a glass of water and waited one hour before I had my breakfast. It was time to get off the ship to explore the cayman islands, when I noticed that my back was going into spasm and started geting severe pains in my spine and I could hardly walk. I got back to the ship and went to bed and that is where is stayed for two days in severe pain. It is about 12 days after I took the pills and still have some side effects. Weakness in my arms and legs, stomach upset, heartburn, pain in my joints and mostly in my spine and jaw pain. I will never take this medication again, I felt like I took poison.

Posted by Pauline on April 27, 2008 12:04 PM | Permalink | Reply

I urge all of you to contact you local news stations about this drug. It has totally destroyed the quality of my 81 year old mothers life. She was an active woman who was rendered totally disabled after the boniva injection. Like many of you, 4 different physicians told her it had nothing to do with the Boniva until she started to get better and went for her second injection. She is 10 times worse than the first time. She cannot lift arms or use hands. Constant nausea and has lost 12 lbs bringing her down to 115. Now all of those same physicians believe it was in fact the Boniva and have told her to stop all treatment. Not much help to her at this point. I wrote to all of my local news stations and one has contacted me. We are doing a story about it today with them that will air in May. The word has to get out. This drug is destroying peoples lives!!

Posted by Johanna on April 28, 2008 3:43 AM | Permalink | Reply

I have been taking Protelos for over 3 years with no side effects but after a recent scan (which showed no worsening of my osteoporosis), my consultant decided to take me off the Protelos because he doesn't like it. My GP has now prescribed Bonviva but I am horrified by all the bad comments. I originally took Fosamax but could not tolerate it because of extreme joint pains in my hand & arms. I am now scared to start taking the Bonviva. Can anyone advise, please? I am aged 61 and have had breast cancer and have heart palpitations frequently.

Posted by Lydia on May 2, 2008 12:46 PM | Permalink | Reply

I was recently diagnosed with osteopenia ( mild) my doctor wrote a prescription for Boniva and gave me a free sample. For some strange reason I decided to look up the side effects and came across this site. I was horrified after reading these comments and have decided not to take this medication. I looked up bisphosphonates ( the active ingredient in Boniva) and find out about the side effect of osteonecrosis of the jaw or better known as Jaw death. Check out the information on this as it is now being reported in patients taking the oral form of the bisphonates and not just from those taking the injection. Thank you all for helping others to make an informed decision before putting this poison into thier bodies. I wish you all a return to health once again after you rid this toxic substance from your bodies.

Posted by Anonymous on May 2, 2008 6:22 PM | Permalink | Reply

Hi-
My Mom is 80 and has osteoporosis. She is in a quandry about taking Boniva and I am trying to help her. I am 50 years old and am in the low range of normal for bone density. My sister is 57 and has osteopenia. Over the course of 5 years, I have actually had an increase in my bone density and do not use any prescription drugs.
Here's what I did:
1-Read "The Wisdom of Menopause" by Christiane Northrup, MD. Read the chapter on "Standing Tall for Life".
2-Use only the type of calcium she recommends. I use Osteosheath. You can get it at http://www.vincoinc.com/. You can't order it over their web but you call the 800 number and order by phone.It also has minerals and vit D in it.
3-Find an alternative doctor that will prescribe BIOIDENTICAL hormones. How??? OK--I searched on formulary pharmacies in my area, then called them and asked them what doctors call in prescriptions there. I started with progesterone cream. DO NOT take synthetic hormones. Dr. Northrup also has a resource section in her book with phone numbers for formulary pharmacy info.
4-Take calcium with minerals 3x a day. You can only absorb about 400mg at a time. I take it at breakfast, lunch and dinner. Most menopausal women need about 1200 mg.
5-I walk but not as regularly as I should.
6-I try to get sunshine without sunblock for 20 minutes a day. Best form of vitamin D
Hope this helps.
RG

Posted by rg on May 7, 2008 7:23 AM | Permalink | Reply

I took the sample Boniva monthly pill my doctor had given me last Wednesday morning, as directed. I even ran some errands before lunch. I had noticed some reflux which was getting worse, but after a light lunch I started to feel more nauseous. My husband was startled by how quickly it hit me. I nearly fainted twice trying to get to the bedroom to lie down. I was starting to ache all over and my stomach was cramping really bad. Four hours after taking Boniva I started vomiting and having diarrhea. I ended up laying in the bathroom floor because I was too weak to get back to bed. I was still aching and the vomiting left me with a headache which lasted until Thursday morning. I called my doctor's office and told them and my doctor didn't think the Boniva was responsible and still wants me to take it next month. I told the nurse that I wasn't going through that again. I still feel dehydrated and weak one week later.

Posted by Sharon on June 10, 2008 10:06 PM | Permalink | Reply

I had taken Actinol for 1 yr "4/05-4/06 Then my Dr recommended Boniva after taking it form April-July I told the Dr I was having some problems with it--pain in my upper right side near ribs--she told me to stop taking them and see how I was--so I didn't take the August dose and was in the hospital 12th with severe pain--I wound up having a liver enzeme count of over 500, panacrese count of 13000 and jaundis--they never found a stone but felt I had thrown a gallstone that blocked the main duct--couldn't eat for days and spent 6 days in the hospital and removed my gallbaladder
I BELEIVE IT WAS CAUSED BY THE DRUGS--AND I HAVE MET SEVERAL WOMEN THAT HAVE HAD THE SAME THING WITHIN 15 MTHS OF THE START OF THE DRUG

Posted by Peggy on June 20, 2008 1:32 PM | Permalink | Reply

Thank God for all of you who have shared your experiances. I have elevated blood calcium and PTH and have had for the last couple of years. My doctor sent me to an endocrynologist and he wanted to put me on Boniva. For what reason I don't know since almost a hundred percent of the time an elevated calcium is an indication of a parathyroid tumor. He told me not to take it until after I have my rotator cuff surgery in case I encountered a problem. I'm using that time to research the drug since I don't usually take meds of any kind, believing the body will take care of itself if given the chance. My BD came back at a moderate risk for fracture. Now, mind you I'm 71 with a history of back problems, back fusion, bone spurs and a small fractured lower verebrae from being hit by a car. I've been in 6 auto accidents. With all of this if my risk factore is only moderate, I'll take that chance and stay off ladders and stools before I will put this poison in my body or anyother poison they want to give me. I don't have osteoporosis but osteopenia which is only the second stage of the problem. Not only that but my insurance won't pay but a small part of the cost. I would have to pay $60.00 for one pill, to do what? Make me sick and not able to get around. No thank you. Again I wish all of you luck and thank you so much for the time you spent alerting the public of what can happen when these doctors hand out medications on a whim.

Posted by Sally Freshwater on June 22, 2008 3:00 PM | Permalink | Reply

I cannot believe the comments i just read..Its very upsetting for me not to know all the bad Boniva does to a persons body..I have been on this poison for almost 2 years. At first my wrist was in terrible pain i thought it was arthrits. Then my whole body was in pain, my bones were in flamed. It felt like i had no skin and my bones rubbing against the other. I had problems walking and getting up from a chair,getting dressed...I now know its from the boniva. I stopped taking it and and look forward to getting my body back to the way it was..I would run, 2 miles and walk 3. It been so difficult to even do a simple walk. BONIVA IS POSION TO THE SYSTEM. It has taken me this almost 2 years to find out that the boniva was causing all of this. I will take caltrate, eat well and exercise. I just want to feel like myself with out the muscle pain,and bone pain caused my boniva. Just do not understand why BONIVA is still on the market that it would cause such terrible side effects. I flushed the remainder of the pills down the toilet where it belongs.

Posted by linda on July 7, 2008 8:11 AM | Permalink | Reply

My Mother, 89, just started taking Boniva. She told me that her urine has a rust color tint to it, and burns very slightly.
That's enough to for me to call her Dr, and tell her that I want her off of it! I do NOT trust any of these drugs for anything. Do you have any idea how much money the drug company's spend on advertising on an annual basis? Nope, Sorry, I'm not paying for some Dr's next round of golf.

Barbels
Glendale AZ

Posted by Barbara on July 13, 2008 2:27 PM | Permalink | Reply

How come nobody has commented on the weight gain from these types of drugs? Well it is so true!

Posted by David on July 24, 2008 5:45 PM | Permalink | Reply

toothache started after 1 year of therapy. never related the muscle aches and pains to boniva. Dentist says not medication related. stopped medication, pain gone..still creeps back once in awhile. I know its the medication, it stays in the body for 10 years I heard. does anyone know if in those 10 years the medication continues to play havoc on your body?

Posted by Anonymous on July 27, 2008 3:45 PM | Permalink | Reply

I just want to know if anyone has the symptoms that I have. I also have the leg & foot cramps, but more so in one foot that has developed extra bone mass on top of my foot. I understand that the Boniva slows the bone mass that we lose when we get older & I feel that maybe that I am not losing the bone mass at all in my left foot & it is adding extra bone on top of my foot.

Posted by Jan on July 29, 2008 4:23 PM | Permalink | Reply

l took my first Boniva pill 2 days ago and l am having flu-like problems. Could anyone manybe tell me about how long l might have this feeling? I hurt ALL over and cannot sit or stand for long. I have not be able to sleep for hurting, I have a terrible pain on the right side of my chest. This Boniva really is posion to the system and l will not be taking it agian.

Posted by Reneau Tompkins on August 3, 2008 7:52 AM | Permalink | Reply

I took BONIVA in tuesday 8:00am but noon I was so sick, got scared felt like dying, pain all over the body, muscles, tendons, short breath, palpitations, nauseated, chills, fever, headache, this is POISON. It has been more than a week I still feel pain in the bottom of my feet and knees. The prescribed this poison only to WOMEN... should be taken off the market. I will continue with excercises, nutrional diet and vitamin D.
PLEASE DON'T TAKE THIS DRUG.
Sally Fields gets pay for doing the commercial, she doesn't take this POISON.

Posted by Alba Marquez de la Plata on August 13, 2008 5:44 AM | Permalink | Reply

I took the once a month Boniva four days ago on a Sunday. I went to work Monday and started to have back pain. I thought that was unusual because I did nothing different but, by the evening when I got home, the pain increased. I was in bed by 5:30 PM. I woke up several times in pain and am still in exteme pain 4 days later. In fact, this morning I almost fell over, was sweating so badly, and had to vomit. I don't have a cold and am waiting for the doctor's office to call me back. They did on Monday and agreed it must be a side effect of Boniva. This pain is worse than I ever had with arthritis and I have been pain free for almost a year because of other medication given me. I just hope the pain leaves as quickly as it started so I can start functioning again. I believe, after reading so much more on the Internet from people who took this drug, that it is just too dangerous. Maybe this drug works for others but the consequences you have to live with when they don't outweigh the benefits. I wouldn't take this chance again!

Posted by Sandy Dodd on October 2, 2008 9:26 AM | Permalink | Reply

Can't believe this happened to me too. DON'T TAKE THIS PILL.

Posted by M Leicht on October 4, 2008 10:47 AM | Permalink | Reply

I have read much on this drug which is a bisphosphonate
This drug actually kills normal bone cell to basically trick our body into a fake protection of our bones
This drug is not right! I can only imagine the excruciating pain that the lab animals went through as they tested this poison on them and yes it is a poison it kills bone cells and causes tissue damage which is why we are all having side effects..Stop this drug emediately ...dont listen when the doctor tells you not too! it is your body and it is telling you things are not right!
and for good reason...I am normally very active with no health problems had only mild bone weakening show up in my spine after a bone scan..according the chart it is barely there! I am on no other medications so Boniva is the culprit of my sudden feeling of muscle pain abdominal cramping and a dull headache simular to what feels like head freeze from drinking or eating something cold to fast! scarey right?
My question is does any one know how to get this out of my body ..took one dose and feel like I have whip lash, my knuckles are stiff like arthritis, and my throat is staying sore but I am not sick with a virus or infection? I have never had a sore throat like this before!
This is frightening me and I expect more problems are on the way before this is out of my system! Any antioxidants or other ways to remove this from the blood stream Please let me know!
Best Luck to all of you!
Di Arizona

Posted by Di on October 4, 2008 2:11 PM | Permalink | Reply

I took it in March 2008. Sore forearm on right side and elbow. Sore enough to apply heat. I knit LOTS so did not think about it but felt (way in the back of my mnind) the Boniva was the ONLY thing I did differently a few days before. Now it is Oct. Muscle aches have NEVER gone away only moved up my right side to my neck - shoulderblade. I feel like I am neurotic but I totally associate this with the 1 time pill I took 7 months ago? Anyone still having problems? If so what are you doing. I will follow up with my info. Thanks

Posted by B on October 22, 2008 9:52 AM | Permalink | Reply

I have found something called Peaceful Mountain Neck and Back Rescue, it has helped with my aching shoulders caused by the Boniva. It is all natural, does a hundred percent better than Aspercreme. The only problem is it can, as far as I know, only be purchased on line. Their web site is Peaceful Mountain. I also found and purchased it off of Amazon.com.

Posted by Anonymous on May 31, 2012 9:34 AM | Permalink | Reply

I am so surprised by what I am reading. I have been taking Boniva for about six months now and have a lot of these symptoms that I just associated with other things.
My legs always ache terribly, I have to urinate more often, I cough more than usual, I feel tired all the time, etc. These symptoms seem to be more noticable right after I have taken my new monthly dose. I will not be taking this anymore. Will be curious to see if all these things subside afterward.

Posted by Rose on November 11, 2008 9:19 AM | Permalink | Reply

I too have been urinating more often, attributed that to a fluid pill I'm taking. I have also been sneezing, coughing a lot, attributed that to allergies, even though I take and allergy pill and I do it even when I am in air conditioning. I now realize that it could be caused by the Boniva. I would bet that if anyone ever listed all the side effects of Boniva they could write a book.

Posted by Anonymous on May 31, 2012 9:48 AM | Permalink | Reply

Hi Rose -- My wife recently suffered terrible side effects from Boniva so we started a Facebook forum, Boniva: The Poison Pill?, for other victims to share their experiences. Please visit the page, click LIKE, and feel free to tell your story. If we all band together maybe we can get this horrible drug off the market!

Boniva: The Poison Pill? -- http://www.facebook.com/BonivaForum

Thanks,
Barry (& Kathy) Miller

Posted by Barry (& Kathy) Miller on August 23, 2012 6:54 AM | Permalink | Reply

Took Boniva for the first time 3 weeks ago, It's been a terrible experience.. I've had terrible stomach and intestional pain, bloating, gas, headaches, diarrhea, moving heat waves in my upper body.. Neck pain, horrible indigeston ( which I've never had ), Terrible pain in my left side moving from my heart area to my stomach and then colon.. I feel worn out from this one pill , wondering how long it take to get a once a month pill out of your system.. Loss of appetite, If I do get hungry and eat it feels like I;ve swallowed a rock .. It is painful.. I have headaches and shooting pains up my neck now , and have lost 2 teeth filling. I'm really scared, I feel like this pill has eaten a hole in my stomach and or intestine's. I have a really bad pain that comes and goes between my breast bone.. Back pain, that's just pain or a burning pain.. Some days I think it about over and then it starts up again..I'm hoping this helps anyone who had taken this or is thinking about taking it.. I also worry about the elderly in homes that aren't give a choice.. I'm sure their families don't have a clue why their loved ones are ill.. Please keep this going .. I can't imagine the FDA allowing people to ingest this medication..Can;t believe it was ever approved...I sure hope I'm better soon this has been a nightmare for me . It actually took me 2 days to even take this pill after reading the side effects listed on the rx.. Much to my surprise they were much worse than ever discribed ...
I did want to note that I went back to see the doctor 2 days after taking this pill, I hadn't even began to feel the full terrible effects as of that day, I was told a stomach virus was going around, and given a couple of thing to help with that ..

Posted by June on November 16, 2008 5:43 PM | Permalink | Reply

Took Boniva IV at the end of June for first time (I was afraid of full dose , so requested 1/2 of the 3 mo. infusion dose) A few days later, or sooner, started having headaches, diarhea, moving heat waves (this is why your comments caught my eye, no one else had described the moving heat waves - I never even had hot flashes 5 years ago during menopause) I later developed a severe eye infection - it seems that too can be a side effect. The fatigue, claminess, feverish feelings bothered me all summer and I did not connect it to the infusion, as the infusion coincidentally coincided with my starting an antidepressant and my dogs having treatment for a parasitic infection. So I thought it must be one of the latter two issues. I had tests for the parasite, stopped the lexipro, and still never considered that it was the boniva infusion - until it finally dawned on me that it must be the boniva. Any advice on how long it might take for the boniva to clear my system? I NEVER plan another dose. Thanks!

Posted by Patricia on August 28, 2012 9:56 PM | Permalink | Reply

I had an injection of Boniva and had to go to the emergency room as I had terrible pain. I also had bad burning in my chest from acid coming up. I hurt in my chest for a week and tried lots of pain medication. I also had pain near my gallbladder and it went to my back. NEVER AGAIN WILL I TAKE THIS.

Posted by Beverly on May 13, 2012 3:24 PM | Permalink | Reply

Hi Beverly -- My wife recently suffered terrible side effects from Boniva (similar to yours) so we started a Facebook forum, Boniva: The Poison Pill?, for other victims to share their experiences. Please visit the page, click LIKE, and feel free to tell your story. If we all band together maybe we can get this horrible drug off the market!

Boniva: The Poison Pill? -- http://www.facebook.com/BonivaForum

Thanks,
Barry (& Kathy) Miller

Posted by Barry (& Kathy) Miller on August 23, 2012 6:56 AM | Permalink | Reply

I took Boniva for about 18 months, I felt great no health issues. Every time I took a Boniva, joint,hip, bone muscle pain and Acid reflux became more painfull. I saw 14 doctors, test, and procedures,had acid reflux surgery, T8 large hemangioma did radition, it relived the pain.bursitis in left hip excerise.
not sure related nodules on thyroid

Posted by ruby morgan on May 17, 2012 11:40 AM | Permalink | Reply

I want to seriously thank every one for that vital information. I am suppose to take my first bonvia pill June 1, 2012. After reading these comments I am going to throw my six months preception in the trash. I am so happy I did some research to find out the truth about this medication. It really hurts my feelings that doctors don't give you the right information before they give you these meds.

Posted by Shirley Jo Manuel on May 17, 2012 12:26 PM | Permalink | Reply

Hi Shirley Jo -- My wife recently suffered terrible side effects from Boniva so we started a Facebook forum, Boniva: The Poison Pill?, for other victims to share their experiences. Please visit the page, click LIKE, and feel free to tell your story. If we all band together maybe we can get this horrible drug off the market!

Boniva: The Poison Pill? -- http://www.facebook.com/BonivaForum

Thanks,
Barry (& Kathy) Miller

Posted by Barry (& Kathy) Miller on August 23, 2012 6:53 AM | Permalink | Reply

I started out taking Evista in 2008, had a problem with sharp pains in my feet. A year later I took one dose of Actonel, one week later I couldn't use my hands, they were too weak. I leave alone and have a cat, not being able to use your hands is not an option. I started taking Boniva August first 2011, at first I had aches in my neck and shoulders, told my doctor, she didn't comment. Then muscle weakness in my upper arms, didn't bother telling the dr, but it has mostly gone away. But the WORST is what I am going through now. It started in April (2012) my left knee started hurting, the first day I could barely walk and then it gradually got better and I was able to live my life as uaual. I took the May dose, a few days later the pain in my knee returned, took over a week to go away. Then on May 23 the pain started again, after 6 days I was able to do some of my normal activies but still had pain, but on day the pain returned, I am still hobbling around and afraid that I might be doing this the rest of my life. I have an appointment with my doctor for next week (she's on vacation this week, lucky her she can at least walk) and I can almost bet that she is going to tell me "its not the Boniva". It doesn't matter what she says I am NEVER going to take this or any other drug like it. I am also aways very tired, didn't realize it could be from the Boniva but after reading several comments and thinking back I realize I realized that it started around the time I started taking Boniva. I am now praying that the problem with my knee will go away soon.

Posted by Mary on May 31, 2012 9:24 AM | Permalink | Reply

This not really a reply but a postscript to the above comment. It has been one month and 4 days since my last dose of Boniva, I still have the pain in my knee comes and goes. What I can do on any given day depends on, not if, but how badly my knee is hurting. The pain in my neck and shoulders is completely gone, I am hoping with time the pain in my knee will be completely gone, and I can plan my days without worrying about if knee pain will make me change my plans. I WILL NEVER TAKE ANY TYPE OF BONE MEDICATION AGAIN!!!!!!!!!! Please, Please don't take this drug or any of these so called bone replacement drugs...........

Posted by Anonymous on June 4, 2012 5:37 AM | Permalink | Reply

Hi Mary -- My wife recently suffered terrible side effects from Boniva so we started a Facebook forum, Boniva: The Poison Pill?, for other victims to share their experiences. Please visit the page, click LIKE, and feel free to tell your story. If we all band together maybe we can get this horrible drug off the market!

Boniva: The Poison Pill? -- http://www.facebook.com/BonivaForum

Thanks,
Barry (& Kathy) Miller

Posted by Barry (& Kathy) Miller on August 23, 2012 6:51 AM | Permalink | Reply

your mention of thyroid issues is what I was looking for I took Boniva for ten months Actonel for two. Had bad acid indegetion with Actonel that abated somewhat while on Boniva but never disappeared. Nothing dramatic while taking it but never felt quite right so I stopped within a month of stopping I was diagnosed with hyperparathyroid, then Graves (hyperthyroid), and a heart issue possibly related to the thyroid problem. Looking for people who have had similar after effects of taking Boniva.

Posted by Anonymous on June 9, 2012 10:38 AM | Permalink | Reply

Am 66 years old and have been on Boniva for some 4 years now. I had no symptoms under recently. It started with jaw problems. So I had my dentist x-ray the are to see if there was jaw deterioration (none). Recently read that after 3 to 5 years, there are no additional benefits from taking this med. Also saw risk of increased femur fractures. I had reported to my doctor about a burning sensation in my left shoulder blade, but he found nothing wrong. Then I saw a posting that other women had a similar burning sensation. I have decided to take a LONG med break from Boniva.

Posted by Anonymous on July 31, 2012 7:42 PM | Permalink | Reply

Hi -- My wife recently suffered terrible side effects from Boniva so we started a Facebook forum, Boniva: The Poison Pill?, for other victims to share their experiences. Please visit the page, click LIKE, and feel free to tell your story. If we all band together maybe we can get this horrible drug off the market!

Boniva: The Poison Pill? -- http://www.facebook.com/BonivaForum

Thanks,
Barry (& Kathy) Miller

Posted by Barry (& Kathy) Miller on August 23, 2012 6:50 AM | Permalink | Reply

I took this drug for 7 years and I cannot believe I am still alive....It took me down and I never knew why....My spine is a mess, Syatica, Herniated discs,and bad heart burn....My thumbs hurt so bad I could not use my hands, I don't know if it will ever leave my system...Carol in Michigan...

Posted by carol curtis on August 9, 2012 7:22 AM | Permalink | Reply

Hi Carol -- My wife recently suffered terrible side effects from Boniva so we started a Facebook forum, Boniva: The Poison Pill?, for other victims to share their experiences. Please visit the page, click LIKE, and feel free to tell your story. If we all band together maybe we can get this horrible drug off the market!

Boniva: The Poison Pill? -- http://www.facebook.com/BonivaForum

Thanks,
Barry (& Kathy) Miller

Posted by Barry (& Kathy) Miller on August 23, 2012 6:49 AM | Permalink | Reply

My mother is 89 and started taking Boniva in 2008. For the past 4 years, she has been sick, nauseated dizzy, pains in her stomach, headaches and light headed, off balance. We have gone to several doctors and she has had mutiple tests. No doctor could figure what was wrong with her. Finanlly I read about Boniva and all the side effects associated with this drug. I am sorry I didn't read about this before, my mother has been going through hell for 4 years. I am also sorry no doctor thought to say this may be the cause of her problems knowing she was taking boniva. It was my responsibilty, and I should have read the side effects again. I did when she first got the drug, but never associated it with her illness. You never can depend on a doctor, you must rely on yourself to read about these different drugs. I just hope she can recover from the damage done with this drug. DO NOT take this drug, it is poison!

Posted by Betsy Heine on August 15, 2012 8:26 AM | Permalink | Reply

Hi Betsy -- My wife recently suffered terrible side effects from Boniva so we started a Facebook forum, Boniva: The Poison Pill?, for other victims to share their experiences. Please visit the page, click LIKE, and feel free to tell your story. If we all band together maybe we can get this horrible drug off the market!

Boniva: The Poison Pill? -- http://www.facebook.com/BonivaForum

Thanks,
Barry (& Kathy) Miller

Posted by Barry (& Kathy) Miller on August 23, 2012 6:21 AM | Permalink | Reply

I took fosamax first then started boniva about 5 years ago. I started having terrible lower back and sciatica pain. Then I was diagnosed with WMD. And lost sight in one eye, I was 55 at the time and my Dr. Tells me this is extremely rare and only hereditary.(none in my family) I had a very mild "trip" in Paris and fractured my pelvis, then in January of this year I stepped down on my left leg and fractured my femur. It was a spiral fractured that required surgery and a rod.
The trauma surgeon told me it ws caused by biphosphonates. This is a dangerous drug and anyone that has been on biphosphonate for more than 5 years should go off of them.the Dr.s are not getting the information on this because the companies are not telling them.
I have suffered the femur fracture and other problems and it is life changing!

Posted by Di on August 20, 2012 3:47 PM | Permalink | Reply

Hi Di -- My wife recently suffered terrible side effects from Boniva so we started a Facebook forum, Boniva: The Poison Pill?, for other victims to share their experiences. Please visit the page, click LIKE, and feel free to tell your story. If we all band together maybe we can get this horrible drug off the market!

Boniva: The Poison Pill? -- http://www.facebook.com/BonivaForum

Thanks,
Barry (& Kathy) Miller

Posted by Barry (& Kathy) Miller on August 23, 2012 6:33 AM | Permalink | Reply

Hi Everyone -- My wife recently suffered terrible side effects from Boniva so we started a Facebook forum, Boniva: The Poison Pill?, for other victims to share their experiences. Please visit the page, click LIKE, and feel free to tell your story. If we all band together maybe we can get this horrible drug off the market!

Boniva: The Poison Pill? -- http://www.facebook.com/BonivaForum

Thanks,
Barry (& Kathy) Miller

Posted by Barry (& Kathy) Miller on August 23, 2012 6:36 AM | Permalink | Reply

Hi Barry and Kathy,
I am also a victim of Boniva and would like to share my experience (which I just posted to http://drugs.healthdiaries.com/boniva-side-effects.html#comment-685205 under Trang Le).

Please note that your facebook BonivaForum is not a working link. Please share your updated link and I will post and Like and tell my story.
Sincerely,
Trang Le

Posted by Trang Le on August 25, 2013 9:36 PM | Permalink | Reply

I took Boniva and Miacalcin for several months. I had side effects from both so quit taking them. The pain in my feet and legs persisted for severl months. This was in 2007. Most of the pain has stopped but I still have trouble with my feet and left ankle, especially at night. How much longer does this medicine stay in your system?...I'm tired
of my feet bothering me!
Sue Quillen Asbury WV

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I to, am suffering from pain in my both knees, I started Taking boniva, back in 08, 7 months into taking this poison pill, i started feeling pain in the back of my knee, i had my suspicions, and stopped taking this awful pill, i now am suffering from knee pain in both my knees, is there anything i can do to alleviate this pain?
i too am warning all women....DO NOT TAKE BONIVA,

I STILL SUFFER from knee pain....

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